Behandling ved prisbelønnet forsker

Jeg har i min søgen efter hjælp fundet ud af at et dansk forskerteam faktisk er de førende indenfor Modicforandringer, hvilket jo er helt fantastisk. Hanne Albert som er en af forskerne har godkendt mig til behandling og jeg starter d. 4. april. Jeg sendte mine scanningsbilleder til hende og hun ringede tilbage ca. en uge efter. Beskeden jeg fik var at jeg har flere problemer i min ryg (hvilket jeg godt vidste), men at hun kan se Modicforandringerne fylder meget og helt sikkert giver mig mange af smerterne. Der findes forskellige typer af Modicforandringer og “heldigvis” er mine den type som hun er særligt god til at behandle med succes. Hun fortalte at hun kun godkender 42% af dem der kontakter hende. Og ud af dem hun behandler får 80% færre smerter. Denne statistik er nok til at jeg vil tage 3-4 mdr. ud af mit liv til at gennemgå denne behandling.

Jeg skal starte d. 4. april hvor min mand og jeg skal til Odense i 4 timer og have en masse informationer om hvad der skal ske. Men indtil videre ved jeg flg.:

  • Jeg skal tage en høj dosis af antibiotika i 100 dage, hvilket skal slå den bakterie ihjel som langsomt æder mine ryghvirvler.
  • Jeg skal have laserbehandling, så mine ryghvirvler får hjælp til at bygge sig op igen.
  • Jeg skal fuldtidssygemeldes da min ryg skal have meget hvile.
  • Jeg må ikke træne.
  • Jeg skal hvile ½ time 5 gange om dagen, hvilket betyder jeg skal have en dagsrytme hvor jeg må være oppe 2½ time og derefter ligge fladt ned ½ time.
  • Jeg skal have en masse kosttilskud, som skal minimere birvirkningerne ved den store dosis antibiotika.

Det værste punkt for mig er helt klart at jeg skal fuldtidssygemeldes igen. Jeg var netop kommet igang med at arbejde ligeså stille igen, og jeg havde en klar plan om, at jeg til sommer forhåbentlig var afklaret ifht. hvor mange timer jeg kan holde til at arbejde og om jeg evt. var nødt til at ende i et fleksjob. Men den plan er nu ødelagt og det er meget sandsynligt at dette vil betyde at jeg står uden job efter sommerferien. Jeg har aldrig været arbejdsløs og i denne situation er det endnu værre, for hvem vil tage en ny medarbejder ind som er syg og ustabil????

Selvom det går mig utroligt meget på og jeg har grædt meget, så ved jeg godt at jeg er nødt til at tage imod denne behandling og gøre nøjagtig som lægerne anbefaler for at få det bedste resultat. Jeg vil nødig stå på den anden side og bebrejde mig selv for at jeg ikke gjorde det 100%. Så jeg er nødt til ikke at tænke langsigtet og istedet tage en dag af gangen. Jeg håber og vælger at tro på at denne behandling kan hjælpe mig. Jeg ved godt at jeg ikke bliver smertefri, da jeg har mange andre rygproblemer, men tænk hvis jeg kan stå om ½ år med kun de halve smerter – WAUW siger jeg bare 🙂

Artiklen nedenfor fortæller kort om Modicforandringer og den behandling jeg skal igang med.

Tak fordi du læste med 😊
Kærligst Zinna

Kilde: Gigtforeningens magasin – feb. 2018

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188 kommentarer

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